As of yesterday, I have found out my 9 month old daughter, Viola, will need open heart surgery. She has a Ventricular Septal Defect and it is located very high on the septum, close to the Aortic Valve. It is approx 6mm in size. The flow across the VSD is affecting the leaflets of the valve causing it to leak. This condition is known as Aortic Regurgitation. Her surgery is schedule for Oct 14. I have been online doing all the research I can. I have also been in contact with other mothers who have been thru the same thing (thanks to the internet) and one of them (Amy) has a care page for her daughter. I will be using this as my carepage to update everyone on Viola's condition. Thank you to everyone who has called an email, if I didnt get back to you I'm sorry. Julio & I are a little stressed out. Im not a phone person anyways....This makes it easier to keep everyone up to date on her and makes it a little bit easier on me. Its hard to talk about over and over again.
As of right now, Viola is in NO pain. She needs this surgery to correct this issues before it becomes a MAJOR issue. Her surgery will be performed at the Childrens Hospital at Montefiore (Bronx, NY).
Thats all I have for now. I gonna try this website out, see how it is...Please let me know what you think!
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Viola has Ventricular Septal Defect (VSD) located very high on the septum (heart wall), close to the Aortic Valve. The flow across the VSD can injure the leaflets of the valve causing it to leak (A.K.A. Aortic Regurgitation).
Viola had surgery to repair the VSD on Oct 14, 2009 at The Children's Hospital at Montefiore. Visit their website: http://montekids.org/
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