Well I am officially DONE Christmas shopping. I just need to wrap some last min gifts! Viola just got over being sick, but as of right now she is fine. (Mom & Dad are now sick, but at least she isn’t!) Viola started to get a lump near her scar, the doctor explained this is just scar tissue. Just freaked me out the first time I felt it! Good news is she is more active then ever....and even standing up (while holding on to something). She only naps once a day and sleeps thru the night (But still with us...she is STUBBORN!) An update on my current insurance issues, yes they have admitted that they have made an error, and promised to fix it, but I have yet to see a check in the mail….
I am excited to see of the new CHD action for 2010. We have CHD awareness weeks, and there is even a bill in congress (The Congenital Heart Futures Act) to support funding for research. I am still a little confused about all the smaller CHD groups. I know this was a discussion on facebook, but there are some great groups our there, but we need to all be one! For example for Cancer support there is the American Cancer Society. Its hard to explain and ask for support for CHD when if you google it 15 different sites are return…and they all have the SAME goal. To be honest I am following the lead of some of the other CHD parents on this (Thanks for doing all the work Levi)., but once this is all resolved I expected this to bring awareness to this birth defect.
Merry Christmas and Happy New Year to everyone.
Friday, December 18, 2009
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