Violas next heart appointment...

Viola will be going to see Dr Fethke on Monday.  Its been a while but this appointment should tell us how Viola's heart has healed a year after her surgery.  Im a little nervous buying consider us lucky that she has been doing so well.  Wish us luck and send us prayers! 

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Almost One Year Later!

WOW!!  I just read thru this blog.  Make me so sad to she my princess hooked up to all these machines!!  I cant believe it has been almost a whole year!  First and foremost, THANK YOU to everyone who prayed for her.  We have a VERY big appointment coming up in about one month.  This will determine how well her value has recovered.  I know we all have one more prayer left in us!! Hopefully all is well and we can even skip the RSV shots!

I will also be a pain in the ass again about the flu shot.  If you dont have it, dont expect to hold her!!  Its that simple.  I will update again once we get some (GOOD) news from the doctor!!!  Again, thanks to everyone for their support!!!  HAPPY HEART DAY VIOLA!!

WOW GREAT VISIT!

So my stomach has been turning for days worrying about yesterday’s cardiologist appointment.  We already knew that the VSD was successful and that her heart was normal size, but our main concern was the leaking aortic value.  There was 3 ways this could have went….  It could leak more, leak the same or improve.  I happy to say it has significantly improved!!!  What a great appointment!

One more shot to go!

After days without seeing Viola (3 feet of snow =lots of work hours!) I took Viola for her RSV shot (second to last one!)  Thank God!  As soon as we walked into the doctors office she started to cry.  She knows now, I feel so bad! I calmed her down, but then the nurse called her name and her didn’t stop crying til we left.  Afterwards I took her to BK and got her some french fries (and a toy)….She seemed to forgive me after that!  We have an echo appointment next week, so cross your fingers for good results!!!

Heart Month!

February is Heart Month and February 7-14 is Congenital Heart Defect Awareness Week. Did you know that Congenital Heart Defects are America’s #1 birth defect? Nearly one of every 100 babies is born with a CHD.  Viola is that 1!  To learn more please visit http://tchin.org/aware/index.htm & http://www.itsmyheart.org/. 

Cant wait for the End of RSV season!!!

Poor Viola, she has been thru HELL.  She need blood work and I took her to a place that states they specialize with kids and they tired 3X and then asked me does she really need this done?  Are you kidding me!!!  I almost choked a b*tch!  I ended up going to a quest lab and they were GREAT!!  She told me flat out when I got there that if she thinks she can’t get it she won’t even stick her!!  Then yesterday she needed her Synagis shots and some regular vaccines.  Poor girl is like a pin cushion now. 

So I am home today because she has a fever and I am spoiling her b/c she has been thru way to much! 
Good news is her iron levels are normal once again.  (They were low after her surgery due to so much blood loss) and her doctor said she looks GREAT!  Cant wait til April when these Synagis  shots are over!

1/9/09 Doctors appointment!

Good news from Viola’s cardiologist!  Her EKG showed her heart is NORMAL size!  I Love the word NORMAL!  He also said he can’t hear the leak (also a good sign!)  The echo will tell us how the leak is doing but these are all GREAT signs!  We are taking her for blood work to get her latest iron count (since it was low after her surgery.

Viola seems to HATE anyone in scrubs now (every time she see scrubs she thinks SHOTS!)  The nurse came in to do the EKG and she was NOT having it!  But dad grabbed some toys for her to play with while they did the EKG and she calmed down!

Good news on my Insurance issue!  I SHOULD be getting a reimbursement from WellPoint in the next 2 weeks!  They agree they screwed up (FINALLY!) and Empire BCBS was so wonderful this whole time!  Every time I call WellPoint, they say call Empire BCBS and every time Empire and I have a 3 way call with WellPoint!  The guy at Empire I spoke to this week was great he was YELLING at them and said he is also filing a formal complaint!  WOOHOO!   I will be happy to have all my $$ back!  It’s been going on for months and I’m happy it is over.  I was not going to let Viola NOT get the RSV shot…but those shots are EXPENSIVE and I can’t wait for that check!  ;)



One last thing...

J.E.T.S JETS JETS JETS!!!

Violas EKG!

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