Heart Healthy....

What great news I had today.  Her EKG was great and her value sounds good too!  Her echo is scheduled for the 17th.  If the echo confirms what we hear today at her appointment, Viola will be HEART HEALTHY!  Everyone at The Pediatrics Specialty Practices in Middletown NY are wonderful.  Dr. Fethke is so good to Viola and so caring!  I just cant thank them enough for what they did for my daughter! 

On a side note (which I sure you all hear me talk about), there is a bill in NY (A7941-2011) to require facilities to perform pulse oximetry screening on newborns. The Bill is currently being reviewed by the NYS Dept of Health.  I would ask if you can write a letter to your local assembly person and state senator and also a letter to the Dept of Health.

Thank You all!

Update 2012

I have not been on this site is a while.  I can remember when I was first told Viola need surgery, I was on this site EVERY day!  I just went thru and re-read all the posts, even the ones from the hospital...hard thing to see your child in that way.  Julio & I felt helpless.  Im glad she is so strong!  Viola will be going for her Heart check-up next weekend.  I think I will never not be nervous going to see her cardiologist. 

I want to thank everyone who has sent letter to New York State Department of health & their local NYS assembly & senators.  New York State has a bill A.7941-2011 that will support pulse ox testing for newborns.  For more info on this check out http://pulseoxadvocacy.com/