I have not been on this site is a while. I can remember when I was first told Viola need surgery, I was on this site EVERY day! I just went thru and re-read all the posts, even the ones from the hospital...hard thing to see your child in that way. Julio & I felt helpless. Im glad she is so strong! Viola will be going for her Heart check-up next weekend. I think I will never not be nervous going to see her cardiologist.
I want to thank everyone who has sent letter to New York State Department of health & their local NYS assembly & senators. New York State has a bill A.7941-2011 that will support pulse ox testing for newborns. For more info on this check out http://pulseoxadvocacy.com/
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Viola has Ventricular Septal Defect (VSD) located very high on the septum (heart wall), close to the Aortic Valve. The flow across the VSD can injure the leaflets of the valve causing it to leak (A.K.A. Aortic Regurgitation).
Viola had surgery to repair the VSD on Oct 14, 2009 at The Children's Hospital at Montefiore. Visit their website: http://montekids.org/
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