Friday, February 24, 2012

Update 2012

I have not been on this site is a while.  I can remember when I was first told Viola need surgery, I was on this site EVERY day!  I just went thru and re-read all the posts, even the ones from the hospital...hard thing to see your child in that way.  Julio & I felt helpless.  Im glad she is so strong!  Viola will be going for her Heart check-up next weekend.  I think I will never not be nervous going to see her cardiologist. 

I want to thank everyone who has sent letter to New York State Department of health & their local NYS assembly & senators.  New York State has a bill A.7941-2011 that will support pulse ox testing for newborns.  For more info on this check out http://pulseoxadvocacy.com/